# Financial & Legal Planning

Guardianship, ABLE Accounts, and Special Needs Trusts

Depending on an individual’s level of independence, different financial and legal tools can help protect their future.

Guardianship & Alternatives

• Full guardianship is a legal arrangement granting a guardian decision-making authority over an adult who cannot make decisions independently.
• Alternatives to Guardianship: Supported decision-making, power of attorney, and joint bank accounts can offer autonomy while providing necessary support.

ABLE Accounts (Achieving a Better Life Experience)

• A tax-advantaged savings account for individuals with disabilities.
• Funds can be used for education, housing, transportation, healthcare, and other qualified expenses.
• Does not affect eligibility for SSI, Medicaid, or other public benefits (up to a certain threshold).

Special Needs Trusts (SNTs)

• A legal arrangement that allows assets to be managed for a disabled individual without impacting government benefits.
• Types:

• First-Party SNT (funded with the individual’s assets, required to reimburse Medicaid after death).
• Third-Party SNT (funded by parents, relatives, or friends, no Medicaid payback requirement).
• Pooled Trusts (managed by nonprofit organizations, ideal for smaller funds).

How to Apply for Disability Benefits (SSI, SSDI, & More)

Federal and state disability programs provide financial assistance to autistic individuals based on need and work history.

Supplemental Security Income (SSI)

• Provides monthly payments to disabled individuals with limited income and resources.
• Eligibility is based on income, assets, and disability determination.
• Funds can be used for basic needs like food, rent, and healthcare.

Policy Watch: Potential Changes to Disability Benefits & Financial Protections

Recent and proposed policy changes may impact disability benefits, financial protections, and access to essential services for autistic individuals and their families.

• SSI & SSDI Funding Adjustments – Possible restructuring or reductions in funding could affect eligibility and benefit amounts.
• Medicaid & Healthcare Access – Changes in Medicaid expansion and funding may impact long-term care options and accessibility to therapy services.
• Special Education & Transition Support – Cuts to educational funding could reduce vocational training and employment support programs for autistic individuals.
• Guardianship & Legal Rights – Potential legislative shifts could redefine guardianship laws and alternative decision-making supports.

Financial Planning for Long-Term Care & Independence

Securing financial stability involves careful planning, budgeting, and investment strategies.

Key Steps for Financial Planning

• Set Up a Budget: Track expenses, identify needs, and allocate funds accordingly.
• Plan for Future Expenses: Consider long-term healthcare, housing, and daily living costs.
• Work with a Financial Advisor: Professionals with expertise in special needs financial planning can help structure a sustainable financial future.
• Consider Life Insurance & Estate Planning: Parents and caregivers should explore policies that provide financial security for their loved ones after their passing.